2.17.2013

Unreal

This is a wildly unreasonable amount of pain. I would go to the hospital if I had any reason to expect to be taken seriously, but the one time - the one time in seven years of constant pain - that I went to the ER because of increased pain that I could not tolerate, the first thing the ER doctor said to me was "We can't give you anything intravenously." Being a chronic pain patient in the ER for pain is not a positive experience.

I don't actually know what it feels like to be simultaneously impaled rectally and vaginally, but that's the best description I can give. It woke me last night, and the pain was so intense I thought I would vomit. In the morning, it had calmed some but was still far above my average of 7 on all of our favorite pain scale. Since 9:00 this morning, it has fluctuated between that and "someone is shoving the spike farther up my rectum." It is truly not okay.

Why is it that I do not have something to take that simply knocks me out on the infrequent occasions this happens?

My state needs to allow medical marijuana. Or medical cartoon anvils to the head.
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4 comments:

Esther said...

I'm sorry you feel this way, Kate. I know what it's like -- or my version of it, that Level 10. It is unbelievable. And it's unbelievable that we have to just sit there and deal with it. It's demeaning, both the pain and the fact that we can't get proper treatment. I hope you feel better soon.

2/17/2013 04:37:00 PM
DG said...

Kate---I'm glad to see a post from you again. I have been following your writings for a while. I, too, had tg decompression surgery from Dr. Antolak in Jan. of 2009. I don't think I had any noticeable improvement until 18 months after surgery. Then slight improvement for the next year and a half. So, 3 years post-surgery, maybe 30-40% improvement. Sounds like a lot but, my pain was off the charts before. Now, 4+ years I maybe am 50% and that is where I think the improvement will end up. I think I have willed myself to not dwell ont the pain: it is still there but not as intense, depending on activity. I am lucky in that I have been able to retire and can lay down and rest anytime that the pain intensifies. My wife, tho, has to do all the physical stuff around the house as I am not able to. I live in Mpls suburbs, I think you, too, live in Minn.Anyway, hang in there and I can talk to you privately if that is someting you want to do.....
Dave.....

3/03/2013 02:32:00 PM
dg said...

However, just to clarify, I still have pain spikes in the 8+ scale, but it is not as often as before. And, I do get relief by laying flaton my back on the couch which has become my bed for the last four years. You have talked about meds, I take cymbalta, neurontin, and nortriptyline forpain and remeron for sleep. Doesn't take the pain away but takes the edge off.........

3/05/2013 11:30:00 AM
jenji said...

I'm so sorry that you're suffering so much without any sign of relief. It really is a slow torture. Whenever I've gone to the ER (for unrelated issues) I brought a folder with my entire medical history and in that file is a pamphlet regarding pudendal neuralgia because they have no clue. Jeeze, my original gynecologist didn't even know what it was, which I feel is a crime. If you're dealing with the pelvic area, be aware of chronic pelvic pain issues. Is that so much to ask? He's been fired.

Anyway, It's been so long since you've posted that I kind of lost track of your particular story, so I went back and read some of your old posts. I understand that you had the surgery, as well as the nerve block. What part of the nerve did they target for the nerve block? During my worst, my backside feels just as you described it and frankly, there aren't enough adjectives to adequately get those who are not afflicted to understand that level of pain. I did get some serious relief from my nerve block/steroid injection, but my doctor hit the nail on the head in diagnosing the precise part of the nerve that was giving me trouble.

As for any bad days that I have now and again, I find that Percocet works quite well aside from the fact that I'm allergic to it. But hives are an easy price to pay for pain relief, I just take it with Benadryl.

I know you used to take Oxy. Don't you have access to any pain medications anymore? If not, now wonder you were in the ER. If I didn't have Percocet, I'd be right behind you on my bad days.

I hope you get some relief soon,

jenji

3/06/2013 05:54:00 PM

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